3 Little Letters Mean So Much

7/20/14

Duffy (Kaylee’s mom) Blogging

ANC count ~ Absolute Neutrophil Count: Type of white blood cells that fight off infection in your body. Neutrophils kill most regular bacteria. When one has a very low neutrophil count, they are considered Neutropenic.

Once we returned home from Florida and had K’s blood labs done, we were called by the clinic the following day with the news that Kaylee was once again Neutropenic. Her ANC count was 103. A normal ANC count is between 3,000-5,000. With Leukemia, if the child is below 500, they have an increased chance of getting sick. This means K was at a very increased risk for getting a sick, and we are on fever watch. K’s oncologist suspended Kaylee’s daily chemo until her sedation and chemo appt (which is this Thursday) July 24th. Her little body needed a break from the daily chemo so her counts can rise.

Kaylee has a hairline fracture of her elbow and has been in an arm cast since June 30th. This was limiting much of her daily life. Throw in a low ANC count and well, that pretty much means house arrest. I put together very few play dates to keep K (and me from going insane) and we did everything from craft days, to coloring, painting, watching movies, playing outside, seeing family and playing with every toy K owns. She has been such a trooper and now she tells anyone she sees “I have pinnk cast. I fwactoood my ewbow. It didn’t hurt. I so brave and I did good job!”  (It is pretty stinkin’ cute, but more often than not, it’s a bit embarrassing when a random person says Awww how did she hurt her arm? Then I look like the stellar parent when K pipes up “I fell off bed!”)

Last week, I was finally seeing the light at the end of the tunnel b/c I know she has her cast appt (tmwr) to see if her fracture is healed to get her cast removed. (Please God!!) Wednesday Kaylee and I had a good day. She got to see 3 of her cousins and play with them. Micah (Our nephew) has always been Kaylee’s favorite, and she was soooo excited to see him and had a ball chasing him around the house and playing in the playroom with him and her cousin Avrie. We had friends over for lunch on Thursday, and before it was time to get dinner started, K and I were playing in the backyard with the dogs. After dinner, Chris said he’d take K out front to play so I could clean up from dinner. I hosed her down in the organic baby bug-spray (like I did earlier that day) and off they went. 5 minutes later Chris came in carrying a hysterical Kaylee with a bloody knee and a scraped elbow (the one not in a cast.) She had tripped over her own flip flop while walking out front to say hi to the neighbors and she was clearly freaked out by the blood. (Poor thing!)  Her first scraped knee was no biggie and we made her feel like a rock star for being brave while I cleaned it and put a band-aid on it. Later, after her bath, I pointed out to Chris that even with the bug spray on all day, she somehow had 4 mosquito bites on her legs.

The next day (this past Friday) we had a planned play date with friends and decided to take the girls to get frozen yogurt and eat outside. While getting K out of her car seat I looked at her leg and noticed one of the 4 mosquito bites was turning into a blister, and mentioned it to our friend we were with b/c she is a nurse at CHOA. She didn’t seem worried but told me to keep my eye on it. Within the time it took us to order frozen yogurt and sit outside, I realized the bug bite K had on the back of her leg was also starting to blister. (Huh??) I was literally 300 feet away from K’s pediatrician’s office, so just to follow my gut, I called and made her a sick appt. (K seemed a bit moody that day but oblivious to her mosquito bites…she was too busy pointing out her new band aid on her knee and telling people how brave she was. hehehehe.)

Thank God I made that Dr appt. K was not happy to be there as it was past naptime, but The Dr took one look at her legs and said “she has a low ANC count, doesn’t she?” I said yeah, 103. The Dr said “She has a skin infection from the mosquito bite! When you have low ANC count, a scrape or bite can easily turn into an infection a normal body could just fight off. Well K has very few of those fighting cells, so it has become an infection.” I said “This happened last night. She was able to get an infection from a mosquito in less than 24 hours??”  The Dr said “She sure did. She needs antibiotics and a cream called in ASAP. She could’ve easily had a fever by tonight because of this.” So thankful this was caught in time! A fever for a leukemia child means an automatic minimum 48 hour stay at the hospital.

3 little letters change so much of our daily life. A…N….C

Although we feel fortunate that K has been off all her chemo pills, the poor girl cannot seem to catch a break. She has been limited to do so little and now playing outside is causing an infection? Boo! I need to invent a bubble for her to play in wherever she wants and not have the risk of getting sick.

She is so looking forwards to tmwr! She walked around today saying to Chris “I see Dr tmwr! If get cast off, mommy take me to the pooooool; play on playgrounddddd, annnnd I can play with water table, Daddy!” Chris reminded her that even if her arm is not healed, we will get a waterproof cast put on for the remaining time needed, so no matter what, she can play at the pool. (Please Lord, let this be an easy day where 1)these x-rays don’t scare her again 2) shows complete healing of her arm  3)cutting of the cast doesn’t scare her 4) that her arm won’t need physical therapy once the cast is removed. Please keep K in your prayers tmwr morning!

The silver lining on all of this is that you would never know hanging out with K that she wasn’t ok. She can hold her own playing with boys that are older than her, and given the chance, she would run anywhere we would let her. She is happy 85% of every day & she is now in the 40th percentile of weight for her age. (Back last summer, we had huge prayer requests for her to gain weight b/c she kept losing weight in the hospital.) Her hair is growing back rapidly (and we think it is beautiful!) I take pictures of it every few days & it is so fun to see the difference! She has also noticed her hair growing b/c she loves handing me her brush in the morning, just so that I will brush her hair. A few of her favorite things right now is playing with her kids Dr kit, having tea parties with her singing teapot,(and her tea accessories) “cooking” in her kid kitchen,  and singing to any musical Disney movie. (I still can’t find Aladdin or Beauty and The Beast for sale at any store or online.) She still thinks Minnie Mouse, and any Disney princess is very cool. No matter what time we put her to bed now, no matter how worn out she is it will take her an hour or more to go to sleep. She wakes up every morning between 7-8am & takes a nap everyday by 1:30. (For those that have never read the blog, I always try to add a few things that are baby book worthy, b/c the purpose of this blog (besides keeping family and friends updated) is so she can read this later in life.

So, we are thanking God that K is not on any chemo right now (regardless of the reason why…I think a break is always good.)  I am praying to get through the terrible twos (and I am positive this is why wine was created.) We are thanking God that we have such a strong little girl, a little girl that has not once stopped fighting in almost a year of this battle! Although she is grasping more and more each day, we are thankful that she doesn’t totally understand that she is sick. We are very fortunate to have family and amazing friends that not only like to visit, but always put a smile on her face when they do visit! We are thankful that despite the obstacles K keeps getting hit with, that God is giving her and us the strength to pray and figure out a way to have fun around it.

We are praying for a calm Kaylee tomorrow and on Thursday (Thursday is sedation and chemo day no matter what her blood counts are.) That we will get to the clinic on time so she doesn’t have to wait long without food or water before sedation, that God will get that ANC count to rise and that accessing her port for chemo will go smoothly. Getting that cast removed and her ANC count going up will open up so many doors for us to be able to do every day!

Every day we thank God in advance for healing Kaylee of her cancer, because we have no doubt that will happen!

We want to thank all the prayer warriors continuously praying for Kaylee and our family! Who knows what could happen without those! After this week, I looked up scripture on hope, and found Romans 5:2-4 and it was exactly what I needed to hear and maybe someone else needs to read it, so just in case, here it is.

Through Him we have obtained access by faith into this grace in which we stand, we rejoice in hope of the glory of God, more than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope.

Looking forward in hope of what this week will bring!

Have a great week & when you get a chance…..please…PRAY4K

Jeremiah 29:11~ “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

**For more pictures of how K is doing, you can follow KayleesBattle on Instagram **

Vacation!!

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A few people asked me why I was so upset about Kaylee fracturing her elbow. Aside from the fact that my daughter now had 1 more thing to deal with, we had a important trip coming up! With approval from Kaylee’s Oncologist, we made plans months ago to go on our first family vacation since Kaylee’s Leukemia diagnosis to visit my mom & stepdad in Florida for the Fourth of July! What could be more fun?! Kaylee’s 2 favorite things are going to the pool and building sandcastles! My mom has a pool in her backyard and we couldn’t wait to show Kaylee the beach…. (Sandcastles galore!) But then just a few days prior to our trip, poor thing had to get a cast on her arm! The ER Dr was made aware of our plans to go to the beach, yet didn’t even tell us waterproof casts existed. We were heavily warned- “do not take her to the beach, the pool or on the boat you told me about… She’ll get her cast wet… She’ll get sand in it… Etc Etc.”
Clearly, we aren’t great listeners… But what we are really good at is sidestepping warnings and making sure K doesn’t miss out on all the fun while trying to somewhat follow the ‘rules.’
And what fun she has had! Thanking The Lord every single day! As I write this, we are on day 4 of our vacation and so far, K has happily dipped her feet in grandma & grandpas pool and didn’t even attempt to get her cast wet. We took her to the beach (like we’d let her miss that? Please.) We held her hand as she giggled at the ocean “chasing her” and felt the wet sand with her good hand. Chris and I took turns holding her to watch the 4th of July fireworks on the beach and although she thought the fireworks were “pwetty” for the first minute or so, she thought the helicopter in the sky was way more fun to watch.)
We took her on the boat and she smiled so big wearing a captain hat, and feeling the breeze sitting next to Pa-Pa driving the boat! (Her cast is still dry, Dr.)
Today we took her to the Naples Zoo & her favorite part was feeding the giraffes! (I’m pretty sure that is my favorite picture of the trip!) She got to see her Great Aunt & Uncle at dinners this week which was a lot of fun!

Tmwr is our last day here & I cannot be more thankful we had this opportunity to visit! I have not seen K this happy in awhile and I cannot begin to describe what a blessing that is for us to see! She has been through so much in the past 11 months, so this short getaway was the perfect distraction. We know when we get home, she has a orthopedic appt, and blood labs to do this week, so we will try to get as many smiles & happy memories as we can before we head back to Atlanta.

Thank you for your continued prayers for K & our family! We are so grateful for those as there is not a doubt in my mind, that those prayers are what keeps a smile on her face!
Enjoy the rest of your weekend!

Duffy, Chris & Kaylee
Jeremiah 29:11
#PRAY4K

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Casted up!

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It has been a realllllly hard day and to be brutally honest, that one smiling pic was the one smile we received all day.
After x-rays (and being forced to pin down my screaming/crying child to get her to be still for the X-ray.) We learned Kaylee had a hairline fracture of her elbow. (I honestly didn’t even know you could fracture your elbow. See? First time moms need a manual.)
The fact that she needed a cast from her fingers to her upper arm for 3 weeks blindsided me bc I honestly believed she was just bruised. This means no playing with sand at the playground (no playground at all for that matter) no pool time, no water table etc.. And that kills me bc what else do we have to take away from this child? We just want her to be able to play like a normal toddler.
Having to watch her scream, cry and kick at 2 grown nurse tech men pinning her down to keep her still to put a cast on her was my breaking point.
That poor child was exhausted by the time we arrived home and is sound asleep in her crib.
We are exhausted and I am in full on pity party mode, so that’s it for the blog tonight. Hopefully I can get a more encouraging update after this wknd! 😏

Thank you for praying for her today & sharing her story! We are beyond grateful for the encouraging msgs and prayers!!
Enjoy your wknd!!

Duffy, Chris & Kaylee
#PRAY4k
Jeremiah 29:11

Headed to ER

Because we’d hate to be that boring family, we thought another hospital visit would be fun. (Sarcasm.)
K was watching a little tv from the center of our bed this morning and I decided to go brush my teeth. Normally, k will sit still through a Minnie show, so I didn’t think something would happen (especially since she gets down from the bed all the time on her own just fine.) Then I heard a thud. (I’m literally 4 feet away from her.) Kaylee had moved around and somehow fallen off the bed.. On her arm. (I feel horrible!) I scooped her up to calm her down, made sure all her limbs were ok and everything seemed fine. The steroids have already kicked in so she’s been extra moody today as it is. She wanted to take a nap much earlier than usual bc she seems to feel rotten from the chemo yesterday. Poor thing, I hate this!

Fast fwd 2 hours… K woke up from her nap saying “Arm hurt”, and crying. We can’t touch it without her crying, and she is cradling it. Chris called the on call Dr who said even though nothing is swollen, she needs X-rays (especially since she fell on the side of where her port is located.)
So, we are on our way to Scottish Rite ER and the Dr has notified them we are coming bc Kaylee is now neutropenic ( low ANC cells) so she can’t be in the waiting area.

Please please, prayer warriors,pray!
Asking for prayer that she just has bruising but nothing broken.
Also asking for prayer for these X-rays. If you’ve been reading this blog from the beginning, you’ll remember the last time was a horrific nightmare having to pin her down for X-rays.
Praying this time will be much easier & will cause Kaylee 0 pain.
Will update when we are done!
Thank you for praying for K! She needs them!
#PRAY4K
Jeremiah 29:11

Duffy & Chris

June 27th 2014

On our way to the cancer clinic for K’s short chemo day! (Hooray for no sedation today!)
They will be checking her blood levels to see if her daily chemo amounts need to be adjusted, access her port, she will receive Vincristine chemo (and we thinkthat’s the only chemo she’ll be getting today through her port. Then they will de-access her port, and start her on steroids again.(Ugh.)
She will be given Methotrexate & Mercaptopurine chemo by mouth tonight as well.

When you get a second, please pray for K. Her appt starts right at her naptime so this could be a horrific day. But we’ll just pray that away! Right? 🙂
Praying for 0 negative side effects from the chemo, and that she will be calm for her port access & de-access.
Also praying for this to be a quick day so we can get in and outta there quickly.
We’ll keep you posted on how she’s doing hopefully later tonight!
Thank you for all your prayers for Kaylee, Chris and me!!

Hugs to you and your family!

Duffy, Chris & K
———

June 22nd 2014

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Nothing was done different today from yesterday…except for prayer. Many prayers went up for K yesterday and we can’t thank y’all enough! She clearly feels much better and played hard all day!
It is amazing how much better our day goes when she feels 100%!
Thank you for praying for our little girl!
Xoxo

Duffy & Chris
#pray4K
Jeremiah 29:11

Prayers please!!

June 21st 2014

Kaylee slept later than usual this morning & she hasn’t felt well all day. She only wanted to cuddle on the sofa. When she seemed better, we needed to run out to do a favor for my brother. On our way back home, k looked terrible and said “I nee nap” (she needs a nap.) I told her we were 2 min from home and she could take a long nap as soon as we got home.
I turned around in my seat to look at her and she was doing the choking sound and then got sick. All..over..the..car.
I flew to the backseat to wipe her off with a towel (after last week, I now carry 2 towels in my car) and was able to use the towel to catch the 2nd round.
She does not have a fever, Chris gave her Zofran when we walked in the door, and after I changed & washed her she is now napping. (I’m watching the monitor like a hawk to make sure she doesn’t get sick in her crib.)

Please pray for K. No idea what is going on or why & the Dr doesn’t need to see her unless she keeps getting sick today. Praying that this is NOT a virus, and perhaps just a yucky side effect from her daily chemo.

#PRAY4K
Jeremiah 29:11
………….
Sent from Duffy’s iPhone

Hair growth!

For the people that don’t have Instagram. Here is k’s hair growth already! So far- blonde in the front- black hair in the back!
(Kaylee was watching the rain outside,so I took advantage of having her back to me to take this picture.) 😊

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Maintenance Phase Month Two

6/10/14

Duffy (Kaylee’s mommy) blogging

Finally! I have attempted to update this a few times lately, and have gotten distracted each time. (Shocking to my friends that know me, right? Lol.) The last time I updated this was a little over 3 weeks ago, so now I will try to play catch up!

A few days after I wrote the last blog, we received a package in the mail. Kaylee and I walked into the house from the mailbox with an excited Kaylee saying over and over “oooh! pwesent, mommy!” I was confused because the package felt like it was a heavy bunch of magazines of some sort. So I opened the package, and read a super sweet note taped to the gift, which was a very large bound book. I saw the cover of the book and immediately started tearing up which turned into the ugly cry after flipping through the gift. Dottie Livingston sent us the Kaylee’s Battle Blog Book. Every single blog we have written, every comment from each blog, every picture we have posted so far, all printed out, all bound into a book, complete with an “About the Authors page” and a table of contents! There are no words to adequately thank Dottie for this amazing, priceless gift to us! This is exactly what I have talked about doing and was going to do when this cancer battle was all over and am so humbled & thankful ‘Volume 1’ is already done for us! If you are following KayleesBattle on Instagram, you will see a picture of the Kaylee’s battle book that Dottie sent us. Thank you so so much, Dottie!

My mom and stepdad Ron flew in to Atlanta on May 22nd. I had called my mom when I knew they were almost to my exit, to let them know I was not home yet and was finishing up grocery shopping with Kaylee. When we were walking out of the grocery store, I immediately saw my mom walking toward us, and with 0 hesitation Kaylee happily yelled “GaGA! GaGa! Up!” and lunged to be in my mom’s arms (melt my heart.) My mom gave her a giant bear hug, brought K over to see Ron where he had just parked, and I could hear her saying “Papa get out of there!” (So she could hug him.) It is clear this little girl loves her grandparents! K had such a great time during their visit. We took her to Tanglewood farms (a miniature petting farm) and Kaylee loved it. I called her Snow White b/c at one point we sat her on a bench near one of the animals, and a group of 7 animals crowded around her to let her pet them…it was precious, and she couldn’t stop laughing. We took Kaylee to her first creamery, and Ron (aka Pa-Pa) introduced Kaylee to her first strawberry milkshake (which she completely devoured and now asks for quite often.) I had set up an overnight date as an early Birthday gift for Chris on the 24th, and knew K would have fun with Mom and Ron. Chris and I had not gone anywhere without Kaylee since last June, so this was a nice, short getaway to Chris’s ideal birthday playground; Harrahs Cherokee Casino in Cherokee North Carolina. Mom was awesome at sending me picture updates on how K was doing (which apparently was making them sit through the movie Frozen 2 times before it was even bedtime hahaha.) She had a great time going on walks in her umbrella stroller with them, and with the exception of refusing to let Ga-Ga rock her or go to sleep at a reasonable hour, she did great for them! She talked Papa into watching Pocahontas with her Sunday morning & they kept her happily busy afterward in downtown Woodstock until we arrived home. Thank you again, mom and Ron for watching her to let us escape for a night!

May 28th, we received a wonderful surprise. My Uncle Steve (My Dad’s brother) and my Aunt Kathy were passing through our area of town on their way back up North and wanted to visit. My dad was also driving over to my house for the visit too. K got to meet her Great Uncle (who she kept calling Grandpa ha-ha) who I have not seen in over a decade. Such a nice visit and am so thankful they had a chance to meet! After my Aunt and Uncle’s visit (and a much needed nap) Kaylee helped me make Happy Birthday signs for Chris to put up all over the house and pick up his Birthday gifts. We also sent him a pretty darn cute video of K saying “We go Birtday shopping for Daddy… It his Birtday.. We sing and eat cake!” hahaha  Oh how I love that little girl!

May 30th was K’s scheduled sedation and chemo day. She currently gets oral chemo daily, but she gets Methotrexate chemo inserted in her spine & Vincristine chemo through her port every 4 weeks. Kaylee woke me up at 4am crying in her crib, and I put her in bed with us, which she loves. We were able to get to the cancer clinic early ensuring K would be the first to be sedated and given chemo, so she wouldn’t have to wait too long without food or water. The Dr reminded us that now she is fully in the Maintenance Phase and her body has reacted well to the chemo. We are now able to take her out of the semi-bubble we have been told to keep her in, and can start treating her like a normal child. I said “Soooo, she can go to the kid’s church group now? On rainy days, she can go to the bounce houses with other kids? She can join Mommy’s morning out when that starts back up again? The Dr said “Yes, Yes, and Yes. Of course use your best judgment with her b/c it is still dangerous if she gets sick, but yes you can start letting her do things she hasn’t been able to do during the harder phases of chemo.” (Thank you Lord!)  Other than us having to keep K from batting away the new Anesthesiologist when he was administering propofol to her for her sedation, she did great! Those sedations never get easier to see or wait through for me and Chris.  The anesthesiologist said he had given K a bit extra Fentanyl for pain, so when she woke up, we greeted a seemingly confused, very drunk toddler. She wasn’t making much sense when she slurred/ talked, and kept missing the straw to her iced Gatorade I was holding out for her, so we made sure with the nurse and the Doctor she was okay before getting her port de-accessed. We picked out the toy for her out of the toy chest (b/c the drugged Kaylee thought the ceiling was more fascinating (and hysterical) to look at than the toy chest at this point.) It was a quick chemo morning and we were home before lunch. She seemed back to normal once we were home, just excessively tired. After a good nap, I made it a play at home day.

June 1st marked exactly 10 months since Kaylee’s diagnosis and a flood of the August 1st memories of taking her to the pediatrician bc I thought K had an ear infection or “something” b/c she hadn’t seemed like herself lately…. so unaware of the telltale signs of Leukemia Kaylee had.. when our amazing pediatrician (and Dr Hill is amazing) thought to do a quick blood test…finding out K was anemic, and had a suspiciously severe high number of white blood cells… and then being sent to the Children’s hospital and hearing the news only two hours later “I’m so sorry to tell you this, but your daughter has cancer, and she is considered high risk.” haunted me all day. It sucks that this diagnosis has stolen so many months of her life, and I hate that she has had to be so sheltered. However, Kaylee has come so far since then, and has been such a fighter, such a trooper, such a light at dark times. I cannot put into words how incredibly proud I am to be her mommy!

June 1st, she was also in the middle of Day 2 of her steroids for the month. We had made sure the Dr put Zantac on her med list this time to protect her tummy, and she seemed to be doing great so we took her to the neighborhood pool for the first time. This girl LOVES the pool and the only time she was unhappy was when we took her out of the pool for adult swim. On our way home, K had a huge smile on her face and said “Pool is fun! We go back soon!” I made sure the entire time K was on steroids, she had play dates set up every day to keep her happy and distracted, so it was nice to do something different each day and see how she interacts differently with each child. I am so happy to be able to get back into the swing of being able to do more play dates with her.  

We kept her busy all wknd with friends and we were thrilled to attempt our first church service as a family in a year on Sunday! A huge shout out to Suzanne Hartzler & Angie Cain for going out of their way to make sure our first service at Revolution Church went well! Suzanne even sent me a txt a few minutes into the service to ease my mind by letting me know K had made a buddy at Rev Kids and was having fun in the kids group!  Everyone was so sweet and we had a great first experience!

Later that day, we attempted another pool day. Things were going great until she did exactly what we often have to tell her not to do in the bathtub; she took a big gulp of water…the chlorine, and then started to choke. So much so, that I lifted her out of the pool to sit on the side while Chris and I tried to coach her through breathing again. Poor little thing looked so scared and was trying to figure out how to breathe in between her coughing fit. When she finally seemed to calm down a bit, she looked at Chris and me and said “I go home now.” We hadn’t even been at the pool an hour, so I looked at K & said “are you sure honey? You want to leave the pool and go home?” K looked upset and said “I go home now!” (Well, alright.) We said goodbye to some neighbors, packed up our towels and left the pool. Nothing seemed abnormal, K asked for a few spoonfuls of peanut butter once I got her into dry clothes, and I reminded her we needed to run a few errands soon. So, after a half hour of Minnie Mouse and a ton of spoonfuls of peanut butter that she wanted, (which is also somewhat normal) we left for Target. (I don’t know if I will ever go back to this Target store I am about to discuss ever again, and before I continue, if you are a bit squeamish about bodily fluids, stop reading now!) Kaylee was sitting in the target cart as Chris and I were shopping for a few items and she just didn’t look like she felt well. She reached forward to cuddle me a few times while I pushed the cart and she looked so sad at one point I just let her get out of the cart and run down an aisle to find daddy. She handed Chris a bottle Pepto-Bismol she randomly picked up, and as I walked up to the two of them, Kaylee stepped to the side and projectile vomited all over the aisle! I was shocked at what just happened; worried for her, and a bit freaking out b/c I didn’t even have more than a random tissue in my purse to clean her up. (Let alone the aisle.) Chris ran to grab some paper towels or napkins while I tried to calm Kaylee down and luckily ran into a target worker mopping. I explained what happened to him, and ran the 5 feet back to Kaylee (this is worst part, sorry ya’ll.) I got down to Kaylee’s level to try to clean her up as best as I could just as Kaylee had round #2 of chlorine vomit on me and herself and the aisle of tums again! I now have random strangers asking me if they can help, the Target worker assuring me this happens a lot, Kaylee crying, and Chris returning with napkins. I cleaned up what I could of K not even thinking what I looked like, picked her up and half ran to the ladies room. Kaylee is now shrieking that she is wet (the girl hates being messy)  while I’m attempting to clean her up with wet tissues, praying she doesn’t get sick again…so we wait…in the ladies room for a few minutes until K finally looks at me and says “ I feel betta mommy!” I’ve never been so thankful that I carry a change of clothes for Kaylee in her diaper bag, so once we got to the car, I changed her out of her wet clothes and I sat on a towel (bc I was still gross)in the backseat with her to make sure she was ok on the way home. We immediately gave her Zofran and a bubble bath when we got home (yes, I finally got to change too, lol). She refused dinner, and wanted to go to bed early. Poor thing.

I didn’t know if she threw up from the chlorine intake or a virus, so I was pleasantly surprised when she woke up Monday energized and yelling “Bagel and milk pwease!” The last two days have been a prayer for my sanity as Kaylee is being a 2 year old.. She is testing every boundary she can, saying No to everything I ask, and throwing tantrums over minor things. Motherhood is so glamorous, right ladies? J  Luckily, we have a few play dates scheduled this week and she will get to spend some quality time with her grandma (Chris’s mom) while I take Chris to get sedated for his Endoscopy.

 Like I mentioned before, Kaylee still receives daily chemo and on Fridays it is 2 types of chemo. Her next appointment at the clinic is June 27th. So I am thankful we have so much time in between each appointment. The most exciting thing I have seen so far is how fast (even while on chemo) Kaylee’s hair is growing! It is mostly fuzz, but I am taking weekly pictures to note the change. So far, the front of her hair is ash blonde, and the back of her hair is jet black, so we will have to wait and see how different it will be from her pre-diagnosis hair :> I am thankful we are able to get her out doing things more often, and that she has the energy to do so! She continues to amaze me with the things she says, what she picks up from conversations and how truly sweet she is to others. She has a tender heart with a stubborn side for sure. We continue to thank God in advance for healing her, and that she is doing so well. We continue to cheer on Kaylee to win this battle and to continue fighting. She is the bravest little girl I know & I love her with every ounce of my being. We are so truly blessed! Gods got this. 

Have a fantastic week, thanks for reading, and huge hugs from our family to yours!

 

Jeremiah 29:11~ “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

It has been 10 months!

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10 months ago today, I took this little girl to the pediatrician thinking she had a possible ear infection. Everything changed that day, and a courageous fighting spirit in our daughter soon emerged. Strongest little girl I know & we are so proud of the way she handles endless medication, sedations, total hair loss, blood tests, and chemo that no child should ever have to endure!
She is almost halfway through this cancer battle and yet she keeps smiling!!
God is so good!
#pray4K

Update coming soon!
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