5/16/14

Duffy (K’s mommy) blogging

(Apologizing in advance at the length of this, but a lot to catch up on.)

Friday May 2^nd Kaylee started the Maintenance Phase. From my trusty binder of info I brought upstairs with me to write this, I can tell you what the purpose of this phase is for and exactly how long this will go on. The purpose of this phase it to kill any residual Leukemia cells. The Maintenance cycles last about 12 weeks and are repeated for the year and ½ left of treatment Kaylee has. This means that this phase is the last yet longest phase of her leukemia battle! (I usually break it down by saying, 2 more Halloweens and one more Christmas to go before her “scheduled” cure date!)

So how has Kaylee been since May 2^nd? Her first sedation and chemo day at the cancer clinic for this phase on May 2^nd went well. We arrived super early to make sure she would be the first to be sedated, and get her chemo immediately after, so K wouldn’t have to go without food for too long & Chris could return to work when we were done. She was a rock star and Nurse Karen made sure K got to pick out a new toy from the toy closet when she was done, so all was right in the world to Kaylee. That Little Mermaid handheld fan kept her playing and awake the whole way home. Lol.  May 3^rd, K had a great day at our friend’s graduation party where there were a ton of other kids to play with. Chris and I were able to get a badly needed date night out that evening as well. We had a great night with friends and we were so thankful Chris’s mom and stepdad came over to watch Kaylee for us!

This phase starts out with K taking the oral prednisone steroid for the first 5 days every morning and evening. She is given Vincristine chemo through her port once every 4 weeks. She takes daily oral chemo of Mercaptopurine. She gets a preventative antibiotic; Bactrim every wknd (as we are used to doing by now.) She also takes another oral chemo Methotrexate every Friday.  She has taken all of these medications before, with the exception of prednisone. When K had to take a steroid in the past it was a much more severe steroid, so the thought of prednisone (in my head) would be child’s play for her. Man, was I proved wrong again! I will just shuffle along to the horrifying day of May 7^th which was after a few very trying days with Miss Moody-cant-stop-eating or crying randomly.

We had a play date that morning, and K seemed pretty moody but not anything too abnormal for someone taking steroids. It was around 1:00 that things got bad. K started crying and literally writhing in pain. When she would finally catch her breath through tears, she would scream “Mommy! Tummy HURT!!” grabbing at her tummy. I called K’s Dr and left a msg. I gave Kaylee Tylenol which seemed to help enough to allow her to nap….for 40 minutes… until her screaming had me coming to her room to see what was wrong. She was in tears grabbing her tummy again. I sat with her in the glider for a while and rocked her and she tried everything to get comfortable and she was so tired. Pain seemed to really hit her just about every 2 minutes. Officially worried now, I called her Dr again, silently praying over Kaylee as she would scream in pain. No parent should EVER have to see their child in that much pain! When she seemed to calm down a bit, asking for a snack and to watch Princess and The Frog, I was thanking God for the reprieve. By 5:30, I hadn’t heard from K’s Dr (nice…. Really nice…) and Kaylee was in pain off and on. I finally, texted our friend Amanda who is also a nurse what was going on, and asking what I could do. She said we could use the Lortab the Dr’s had prescribed K to help her pain and asked if K was taking Zantac, because on steroids she should be taking Zantac every day. I ran to K’s med list noting that Zantac wasn’t even listed for her to take. (At this point, the clinic is closed and I have called for the emergency on call Dr 3 times, being as annoying as possible so someone would call me back! Chris had also called me from work sounding stressed & relayed he wouldn’t be home until well after Kaylee’s bedtime.) I was on my own. This is when I had a mini meltdown. As I got K’s dinner ready I let myself throw a silent 3 minute pity party in the kitchen, letting loose the tears of not being able to help my child in pain. Kaylee ate dinner, and I tried everything to distract her, but she was back to screaming and crying in pain. I gave her Zantac, and lortab~ withholding her nighttime steroid until a Dr called me back. As I was giving K a bubble bath, I finally got a call back at 6:30 from the emergency on call Dr. This Dr was absolutely horrified that K didn’t have Zantac listed on her med list b/c the steroids mixed with the chemo could cause serious pain, ulcers & pretty painful heartburn for an adult, let alone a 2 yr old child! She was supposed to be taking Zantac to protect her tummy since May 2nd! Anger doesn’t even describe what I felt for Kaylee’s Dr. Thank you Lord that after the bath K seemed so much better! The Zantac and lortab had kicked in. After her jammies were on, books were read, a ton of snuggles and my nighttime prayer with her was over, Kaylee was seemingly free of pain, preciously sound asleep in my lap.

May 8^th, was an entirely different day. With a ton of prayer supporting K, and Zantac given to her that morning, K was a happy girl! I took her to the outlets nearby to hunt for cute birthday gifts for my niece & nephew. K had so much fun in the Carters store picking out a few summer shirts and skirts that she liked (which surprisingly matched) and I couldn’t stop laughing when she would smile and pick through the bottom rack of skirts and say “mommy, this cute…you think?” such a little adult! She was ecstatic when we were outside walking to a different store; a song from Frozen started playing through the outside speakers.  I was the mom walking with her 2 year old singing on the top of her lungs to ‘Let It Go.’ Didn’t care, loved every minute of it, totally encouraged it, because my child was….happy!  J

Saturday May 10^th, Kaylee had a great day. We went to our niece and nephew’s birthday party and K got to see so many relatives she loves so much! She of course made a beeline to hug her cousin Micah and laughed while he and the other boys at the party had a balloon fight. She took a walk hand in hand with her Godparents, pointed out big trucks with Uncle Kevin, gave hugs to just about everyone, and wanted to eat a million of the birthday cupcakes! Family days are seriously so good for the soul! Mothers Day was May 11th ~ Chris had set up reservations at a beautiful Mothers Day Brunch nearby, and Kaylee loved people watching and eating endless amounts of bacon and fruit. (Soon we will get to attend church on a Sunday as a family!) Chris told me to take some time for myself to get a pedicure I had gotten a gift card for at Christmas. I felt a bit guilty leaving b/c Kaylee is the reason I am a Mother on Mother’s Day, but to be honest that hour alone was heavenly, and she had a blast playing with her Daddy!

This past week has flown by, with a few play dates and scheduled lab work to get K’s counts checked. Nurse Mary called to share her outstanding counts with me. Her ANC (white blood cells that fight infection) count was 1481 (fantastic!) Her Hemoglobin was great, her Platelets were in the 200’s (also very good) and her other counts were stable! Such a praise to God! She is still a restless sleeper every other night (had me awake hourly from 4am last night.) but I will take restless sleeping over her in pain any day!  Kaylee does not have to go back to the clinic for sedation and chemo until May 30^th. It is so nice not having to trek back and forth to the Cancer clinic twice a week!

Kaylee’s grandparents (my mom and stepdad) will be flying in to visit next week and I couldn’t be more excited! We have a few fun things planned to do, so I’m looking forward to getting some cute pictures! Oh, and we are also seeing some fuzz coming in on Kaylee’s little head, so that is encouraging!

I need to thank y’all again for every prayer, every sweet comment and for sharing K’s story! We have made our life an open book in an attempt to get her as much prayer as possible! We are thankful she has had so many smiles lately, such high energy and talking up a storm! I seriously crack up daily at the things that she comes up with! It has been a long 9 months since she has been diagnosed, but we have learned a lot and are trying our best to make life as normal as possible right now. We are looking forward to many more happy days to come, as Kaylee continues to shine even while taking daily chemo…and THAT is something to thank God for!

Enjoy your weekend, thank you for reading my rambling, and when you get a chance, please continue to PRAY4K.

*Favorite Song of the night: Needtobreathe~ Multiplied.

Jeremiah 29:11~ “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

April 29^th 2014

Duffy (mom) blogging

So the Delayed Intensification Phase is over! Over! Over! Over! Feels like a big milestone to us! Kaylee was supposed to start the Maintenance phase on Thursday April 24^th. That didn’t happen. Let me explain our night before.

Kaylee has been more than a restless sleeper just about every night. (One of the reasons it has taken me a while to post an update) Wednesday the 23^rd was just about the worst. K woke up at 2 am crying/screaming. When I went in there to comfort her and try to rock her she about threw a fit, pointed at the door to our room and said “go in there peeeease!” I just resigned to let her sleep with us, because I was far too tired to deal with a fit when I knew we had to get up at 6am to get her ready to leave for chemo. Sleep is what she didn’t do. She apparently thought she was at a trampoline park b/c she layed down for approximately 10 minutes snuggling into her daddy. I had already started drifting back to sleep when I felt the bed shaking by my head. I looked up to see our smiling toddler holding the headboard and jumping up and down on the pillows. (Don’t mess with me or Chris when we are sleeping, we are not nice.) I used the mom voice and said “Down! Now!” She immediately sat down; still smiling at me like it was playtime. I told her to lie down and go to sleep. She snuggled back into her daddy. She then decided to drill her razor nails into Chris’s neck and ear to wake him up. He wasn’t happy. I drifted back to sleep and woke up 20 minutes later to being repeatedly kicked in the stomach and seeing K’s head at the end of the bed. She was doing jogging exercises of some sort (nailing me in the process) and giggling. Me: “Kaylee! No ma’am! Up here by the pillow NOW!” she immediately scoots up to the pillow in between Chris and me. Me: “Lie down and GO TO SLEEP.” Chris: “Kaylee, go to bed. If you aren’t sleeping in a few minutes, you are going back to your own room.” (Empty threats.) No joke, 30 min later, I woke up to being head butted and K trying to snuggle with me with her forehead pressed into mine. I could go on…b/c things like this went on for every 30 min until 5 am! I looked at Chris and said “this is ridiculous. I’m canceling tmwr. We are not putting her in the car in an hour to take her to get sedated & receive chemo after not sleeping…nor do I feel safe driving after no sleep.”

So we canceled her appt and caught quite the flak from the nurses when I told them the issue. They said I still needed to take her to get blood labs done so they could see what her counts were. So I did, and Kaylee the no-sleep-crabby-crab was not happy. :< But, guess what I found out a day later when the nurses called me with her lab results? It wouldn’t have mattered if we had taken her to the chemo day anyway. Her ANC count was too low to do chemo. She needs to have a 750 or higher ANC count and she was in the 500’s. Thank God we didn’t get her up and dressed, with no food or water (she can’t eat or drink before a scheduled sedation), go through Atlanta traffic, get her finger pricked, and then wait for her counts to come back only to be sent home again. Needless to say she napped well that day! K is scheduled to get her blood labs done again this Wednesday (April 30^th) and scheduled to start the maintenance phase on Friday May 2^nd.

She had a great Easter day. We couldn’t go to church for the first time on Easter, so that was sad, but I attempted to explain the Easter story to her. She was thrilled to see that the Easter bunny left her “pwesents” and we were blessed to have family members visiting in and out of our house all day (which we really do love.) Chris hid plastic eggs for her Easter egg hunt (which was really cute, I need to upload those pictures.) Her great grandparents also brought her an Easter basket-bag full of goodies, so she loved that. She loved all the attention from so many different family members, and I was just happy we didn’t have to restrict any visitors!

Since then she has been a ball of energy, and had quite a few play dates. Her favorite thing to do now is build sandcastles. Our neighborhood playground is surrounded in sand, and Kaylee loves it! One hard part was during a play date last week. I guess I had convinced myself that none of the kids would know K was sick, and just thought she had slow hair growth or something. Man, am I clueless. This sweet little four year old came over to where my friend Courtney, Kaylee and I were building a sandcastle at the playground. She was showing us her Barbie’s and letting K play with a few of them (burying them in the sand.) When out of nowhere this sweet little girl pointed at Kaylee and said to me “Soooo…She has Cancer huh?!” I was pretty shocked, and said “Wait…How old are you?” She said “I am 4.” I said “Well, you are a very smart 4 yr old. Yes, she does have Cancer. She has medicine that is helping her get rid of it.” The little girl just nodded. Just saying that to her felt like taking a bullet, b/c I had no idea someone so young understood why K was bald and/or noticed she was different. It hurts my heart, but I am yet again reminded to be so thankful that K is so young & doesn’t know she is “sick.”

Since this blog will ultimately be put into a book for Kaylee to read when she is older, I feel like we need to put in a few things that are baby book type updates. Minnie Mouse is still very cool to her, but no longer her favorite. I showed her the movie Tangled, and she is obsessed with Repunzel and the horse Maximus from the movie. Mac and Cheese is no longer her favorite. Any deli meat is now her favorite, as well as pretzels. She loves to take bubble baths, say “God bless you!” when anyone in hearing range sneezes, give kisses, and act suddenly shy when she meets someone new. She loves to point out trucks that are passing by when we are in the car, thinks the sunroof in the car is the coolest thing ever, and still loves to dance to the music from Frozen or the song ‘Happy’ “Happy song on, mommy! I dance!” I never think it is possible, but I love her more and more every… single… day! True, some days are much harder than others, but she is the greatest blessing God has ever given me.

There are a few rumors that have been brought to my attention that I want to go ahead and address to avoid any further confusion. Kaylee is in a 2.5 year battle of A.L.L Leukemia with an 83% chance to beat this cancer. For us, those are great odds. She is not dying nor does she have 2 months to live (?? where that started, I have no idea.) So far, her body is reacting to chemo exactly the way we have hoped & prayed for. We have 0 doubts that God will ultimately heal her, and our faith has not wavered about this at any moment. We are realistic that if we do hear the word remission, we know that it does NOT mean cured, it just means non-active.

So, Wednesday is blood labs, and Friday is the beginning of the maintenance phase with a sedation and chemo day. As soon as I get the updated calendar on this phase, I will post about what we are expecting. I am just glad the hardest phase is over! God has been so good and we are so thankful! We could not do without your sweet comments, msgs and prayers! We are thankful for K’s energy, napping, and eating well. We are soooo thankful that soon we will be able to attend church as a family too! There is still a long journey to pray about ahead of us, and with every prayer, she is beating cancer one day at a time!!

#Pray4K

Jeremiah 29:11~ “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

**If you would like to keep up with pictures of how Kaylee is doing, check out kayleesbattle on Instagram**

April 16th
Mom blogging

We are home! Home! Home! Home! Home! Home! (I am practically singing this!) the Dr told us on Monday morning that k’s ANC count (illness fighting white blood cells) dropped again and said we would need to spend another night in the hospital. We sadly said okay and then processed the news when she left the room. We thought; why in the world do we need to stay in the hospital when all her tests came back negative.. she will actually eat at home, be in a cleaner environment, be free of port lines that were hooked up to fluids, and most definitely get more rest at home?!
We called the nurse to ask the dr to come back in to our room when she could because we would like to discharge ourselves out of the hospital. The Dr came right back in and listened (actually listened to me) and my various reasons on why K would do better at home than at the hospital. Then shockingly said “ok, I can see your points are valid. I will discharge y’all & trust that y’all will call us if Kaylee gets a fever, that you’ll continue giving her the antibiotics every 12 hours, and limit visitors to only family.. But no going anywhere, no playground, no grocery shopping etc with her. It is too risky with her ANC count being below 100.” We eagerly agreed and packed up our stuff! Kaylee hated getting her port de-accessed bc they have to peel off the tape around the port that clearly hurts after being stuck there for a few days. However, once we were in the car pulling out of the CHOA parking deck, she said “I go home! I so excited!” which obviously made us realize we made the right decision! Thank you Lord!
Well I can happily say that K is doing great at home! She’s eating again (for some reason she eats just enough to stay alive in the hospital.) She’s dancing to songs from the movie ‘Frozen’ again, she’s coloring, singing the ABC’s, putting stickers on the dogs (and cuddling them every morning! K LOVES her dogs!) She has her normal bedtime again (bedtime at the hospital takes hours to get her to fall asleep) AND I’m not waking up every 90 min to change her diaper! Hallelujah!
Although we don’t know her current ANC count, I have to imagine they must have risen by now. So, it’s “house arrest” until her chemo appt on Friday. It is getting a bit tricky trying to be creative on things we can do inside all day, every day, but I will happily take this over being in the hospital (as nice as the AFLAC Cancer & Blood Disorder wing of the hospital is.)

The Dr set Kaylee’s chemo appt for 8am this friday (Good Friday, April 18th) because Kaylee will most likely need another blood transfusion after her chemo. Transfusions make it a much longer day. But guess what?! Today is Day 50 out of this 56 day phase!! I can see the light at the end of this terrible phase and cannot wait to say “Sayonara Delayed Intensification Phase!! We will not miss you, or what you put our daughter through!”

I must say that going through this phase made it so much easier being able to talk it out with a new friend, another mom, a giant beacon of light for me, who is dealing with the exact same thing. Sweet Brady Hall’s son Shephard was diagnosed with ALL Leukemia in August as well. “Shep” is exactly one week ahead of Kaylee in this cancer battle. Brady was able to tell me what was about to come, things Shep was going through, and encouraged me when I was worrying myself sick over this phase. Shephard is an amazing fighter,and was just admitted to the hospital for a blood infection this week. They are praying that no bacteria has infected his port. I would love it if y’all would like to join with me in my daily prayers for him & his family of 5. His Facebook page is Warrior Shephard if you’d like to follow his story. Thank you, Brady for continually being a light for me when I’ve wanted to throw a pity party!

We are praying for the rest of the week to go well & to continue seeing a smile on our little girl’s face! We are praying for the day to go by quick on Friday & the nurses to be well rested & thorough. We will pray that all her counts are up & she will be calm for her port access & de-access. We are praying for 0 side effects from chemo so that she can enjoy Easter (and the small Easter egg hunt I have planned in the backyard 😉.)
Overall, we are soooo thankful to be home, to see how much better she is doing, and that is all due to your prayers!!! We cannot thank you enough for keeping K a constant in your thoughts & prayers!
We are almost through the hardest phase she will ever go through in this battle and the countdown has begun!!

#pray4K
Jeremiah 29:11
“For I know the plans I have for you,” declares The Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

**********

Well, we had originally been scheduled to go to the clinic this morning for K’s chemo day. She woke up crying at 5am and came to sleep with us. When my alarm went off at 6, I realized how hot she felt. Her temperature read 100.4 which is the exact temperature that means she has to go to the emergency room. We called the on call Dr who said for us to go to the ER. We left the house & hit some rush hour traffic. Once the clinic was open, I called them. They said it would be faster if we came to the clinic for antibiotics, and any transfusions before they would escort us Nxt door to the hospital. Her ANC count & platelet count were both super low. She received a platelet transfusion and a 3 hour blood transfusion.
We are currently waiting to be escorted to her hospital room for a minimum stay of 48 hours and she still has a mild fever. They have tested her for every infection possible & we are hoping they all come back negative. Please keep K in your prayers.
Not looking forward to a wknd at the hospital again, but looking forward to my little girl feeling better again!
We love y’all & thank you for all the kind words & prayers!
Have a great wknd & please pray4K.

Duffy & Chris 🙂

March 26th-April 4th, 2014
Duffy blogging (K’s mom)

38 days of this phase complete!

(NOTE: This was originally written on April 4th, so this is behind & I have not changed what was written initially.)

I always try to keep this blog updated as often as possible, but I again let the last nine days since the last entry go by. The last time I updated this, we were about to start Day 29 of this 56 day phase. Today, we are finishing up day 38! How time has gotten away with me. I will try to remember how the last week ½ has been.

The Lord answered quite a few prayers from our last prayer requests. We asked for prayer that the long day of chemo  on March 26th would go by quickly, and it did. The nurses were very thorough, and the pharmacy mixed chemo quickly and accurately. She still cried when we put numbing cream on her port (mostly because she has figured out what it means when we do that.) She still hates getting her port accessed and de-accessed, and we waiting hours for her to be sedated (with her crying out that she was hungry and thirsty often, which was so hard.) After the sedation was finally done (and me asking for someone in charge to speak to about the long wait for sedation) Kaylee pulled through the day like the fighter that she is. She was ecstatic that therapy dogs were visiting, that Chris listened to her request for grilled cheese and French fries for lunch, giggled with the nurses, and met another young fighter/ new friend named Hagan in the play area! (His Facebook page is Prayers for Little Hagan, if y’all want to check it out. We will be praying for that lil cutie & his family!) You would never know what was dripping into K’s little body the way she laughed and played! She didn’t even want to nap until we were in the car on the way home! We were so tired from the day when we finally arrived home, we both agreed it was a definitely order pizza night!

We started the chemo injections that we have to give K on March 27th; I didn’t think she would remember these because the last time we had to give her the Cytarabine injection was quite a few months back. She remembered, and she was not happy. I have to admit, this is one of the hardest things for both Chris and me to have to do. (To the parents of diabetic children that have to do shots daily, I have the utmost respect for you! I cannot imagine having to do this all the time!) I try to talk calmly and quietly to her in her ear with her on my lap while Chris gives her the injection in her upper thigh. She screams and cries, and looks at us in horror while our hearts shatter into a thousand pieces. Once the 5 second shot is over, she is still crying but repeating our words to her “I so brave, I did grea job!” I pick her up, hugging her tightly affirming she did indeed do a FANTASTIC job, and carry her into her room to put her pjs on for bed, making a big deal that there are princesses on her pj bottoms! Once she is in her pjs, her tears subside and she is happy to pick out books for us to read to her before bed. Thankfully these shots are 4 days on, 3 days off. The last day that we will ever have to give her this chemo injection is tomorrow! (I just realized that! I might just make a poster for a picture to celebrate another milestone is over in this journey for tomorrow!)

Friday March 28th, I drove K to the cancer clinic to get her chemo injection done by nurse Mary and pick up the injection for the following day that we would need to give her. Clearly the years of experience helped, b/c K only cried for a total of about 5 seconds with the shot, and then was excited to hear we could go home. No port access, so she was happy! Later that day she was running with the dogs in the yard, and showing Aunt Sherry (who came to visit) her chalkboard drawing skills. The girl just amazes me!
K started a new drug last week. Every night, we crush up her new pill called Thoiguanine, (which is known to stop the growth of cancer cells) dissolve it in warm water, and add cherry syrup. Kaylee surprises nurses and us at how well she takes any medicine thrown her way. We are reminded daily how thankful we are that giving her medication is never a battle!

The only day that was somewhat rough was Sunday March 30th. The amazing organization CURE invited Kaylee to join in on a photo shoot for their annual campaign material. The only problem was the photo shoot was scheduled at her normal naptime. She also refused to eat much at all that morning. So, by the time we got to the photo shoot, we had a very tired and cranky two year old. We packed a cooler full of snacks for her, but she didn’t want anything. She was thrilled this was being done at a playground, and we recognized some people from our hospital stays. K did great during her individual pictures, but we apologetically pulled her out of the group shot when she became a hysterical mess, and explained that she was done for the day. CURE was such an amazing source of help to us during all of those days in the hospital that we wished this had gone better. She fell asleep in the car within 5 minutes of leaving.

Monday& Tuesday Kaylee was dancing up a storm, a tornado of activity. I was able to capture her on video dancing and singing to a song in the movie Frozen. We had friends over for dinner. One of my best friends; Jessica, and her family had just moved here from California. Jessica is who I talked to late at night almost every night we were at the hospital. She, her husband Dan, and their 3 boys have been such an encouragement and support to us these last 7 months, and I cannot even describe what a Godsend it is to have them living close to us now! We were so happy to have them over for dinner! Kaylee adores their three boys, and she smiled, laughed and played with them well past her bedtime.

We were up at 6 am the next morning (April 2nd) for sedation and chemo at the clinic by 8am. This time things went rather quick, which is always good. I always have such a strange anxiety every single time she is sedated. I can repeat scripture all day but there will always be a fear there. Luckily, there is never more than a 5-10 min wait before we can go back in her room and wait for her to wake up. As soon as K woke up, the nurse pushed the chemo into K’s port line, and then we just had to de-access her and we could go home! K did better with this b/c the nurse was able to pull the adhesive off the port faster b/c it hadn’t been on that long.
When we got home, K took a good nap when Chris left to go back to work. She woke up happy and played hard until dinner! (Still amazes me what a rock-solid fighter she is!)

The following day was a packed day of family, friends visiting and a play date in between. Friday April 4th, it was back to chemo. I was on my own with K, so I was so happy to run into our friends at the clinic! Sweet Kayla and her fabulous mom; Maureen were there. (You can follow Kayla’s progress on her Facebook page Cowgirl Strong For Kayla! She is a rock star and almost done with her cancer treatment!) K immediately gave Kayla a hug (these two have had a connection from the first time they met at the clinic, and (back In November) Kayla chose Kaylee as a recipient of a TeamSummer.org gift of her own IPod Touch! (That gift has saved my life on chemo days! There still aren’t enough thank yous for that!) The clinic was slammed that day so for Kaylee to get her 1 chemo shot took two hours. Nurse Karen let Kaylee pick out a present from the toy closet when she was done. K was ecstatic to get a light up princess wand that she played with the entire ride home. :>

Because this has taken me so long to post, I am going to stop this post here, and begin a new one (because Sunday April 6th, was such a tough night, I know it might be another long one.) So I will try to write a post from April 6th- today April 10th tonight.

Thank you for all your prayers for K. She would not be doing as well as she is without those, and we are forever grateful for y’all to care enough about her to read through my ramblings!!

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#Pray4K
Jeremiah29:11~ “For I know the plans I have for you” says the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

**If you would like to see more pictures of what Kaylee is up to, follow her on Instagram at KayleesBattle **