Duffy (mom) blogging
What a week! As I was chanting away getting sick while packing tonight,(I feel crummy) I realized I hadn’t written an update since last week. So here ya go- 🙂
Every night before bed, I pray out loud with Kaylee. God has been answering many of these prayers such as; Kaylee sleeping in her own crib (most nights), helping me find a way to make each day a great day for K, keeping any sickness away from her, and to hold steady on her answer to prayer-fantastic appetite throughout the day. (As of today she weighs 23.7 lbs, which is super!) We are thanking The Lord for bringing a blessing of new friends into our life with kids K’s age to play with and we are thankful for amazing friends & family who made a point to visit K when they could this week! So many people said the same thing this week “she’s so talkative & happy! She has so much energy and the “Mommy, I do it!” attitude back!” She was dancing up a storm for all visitors, and if you follow Kayleesbattle on Instagram, you
have seen pictures of her with a giant smile on her face as she went down her new playroom slide (which she does atleast 100 times a day!) We truly thank The Lord for that energy & happiness!
Wednesday morning I took K to get her blood tests done. Again, I cannot say enough about Denise the lab technician who has fallen in love with Kaylee & vice versa. By mid-afternoon the Aflac Clinic called me with results! Kaylee’s ANC count (those darn infection fighting white cells) were still not high enough for her to withstand the upcoming 4 day chemo. Her ANC count has to be at least 750. Last week her ANC count was 600 and we were sent home. This week it was 700, but somehow the nurse said her counts might improve enough by Friday morning,(?) but there is no way of knowing without pricking her again friday to test it. (Poor K.) So we “should go ahead and pack up like we would for a 4 day hospital stay & arrive at the AFLAC Cancer Clinic at 8am just in case her counts are high enough to go ahead with her lumbar puncture & weekend methotrexate chemo drip.” Although at first all this did was annoy me, but i was humbled quickly by thinking, who am I to judge Gods timing? His timing is perfect and if K’s body is ready Friday, ok, and if not, there is an unknown reason and all I am to do is to trust God & know there is a reason. (I’ve never been a good “be still and wait” kind of person.)
So that is what we are doing. The car is almost fully packed, the alarm is set for 6am,and the house sitter (for our dogs) is on standby. Lol.
IF K is well enough for everything tmwr, then we ask y’all to join us in praying for a calm Kaylee while they access her port, that God will keep her safe while she is under anesthesia (for her lumbar puncture), to keep me healthy so I can be at the hospital with Kaylee, and 0 side effects from the heavy-hitter chemo drip that would begin Friday evening.
If her counts simply are not high enough, I will keep y’all updated.
We cannot thank y’all enough for all the prayers being said for K and our family. Thank you to the people that have ordered the PRAY4K shirts this week! They are being shipped out tmwr! We are so blessed by your comments on the blog & Instagram, so know those do not go unnoticed! I wish you all a happy & healthy weekend & we send a hug from our family to yours!